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Thursday, November 17, 2016

Be the Lotus. Rise from the mud!!


Just like the lotus, we too have the ability to rise from the mud, bloom out of the darkness, and radiate into the world!

The lotus is the most beautiful flower, whose petals open one by one.
But it will only grow in the mud.

It represents for me what I have experienced emotionally and physically since my diagnosis with lupus, fibromyalgia, neuropathy and others....and my journal to healing with each surgery that I have undergone.

The lotus flower represents one symbol of fortune in Buddhism. It grows in muddy water, and it is this environment that gives forth the flower’s first and most literal meaning: rising and blooming above the murk to achieve enlightenment.

The second meaning, which is related to the first is purification. It resembles the purifying of the spirit which is born into murkiness.

The third meaning refers to faithfulness. Those who are working to rise above the muddy waters will need to be faithful followers.

In order to grow and gain wisdom, first you must have the mud --- the obstacles of life and its suffering. ... The mud speaks of the common ground that humans share, no matter what our stations in life. ... Whether we have it all or we have nothing, we are all faced with the same obstacles: sadness, loss, illness, dying and death. If we are to strive as human beings to gain more wisdom, more kindness and more compassion, we must have the intention to grow as a lotus and open each petal one by one.
Suffering makes us stronger and teaches us to resist the temptation of evil. When we banish evil thoughts from our mind we are able to break free of the muddy water. The mud shows us who we are and teaches us to choose the right path over the easy one.

Finally, the lotus flower represents rebirth, both in a figurative and a literal sense. The rebirth can be a change of ideas, an acceptance , the dawn after one’s darkest day, a renaissance of beliefs.

"Be the Lotus. Rise above the mud!"

The mud for me has numerous meanings. It refers to the lupus and other illnesses that I battle everyday. It refers to the negative comments that I receive in messages. It refers to the nay-sayers...those who look to see me fail.

I hope that my words in this video help you to see that no matter what you might be going through...it is possible to rise above it, and become even stronger and more resilient....both in the face of negativity, as well as the face of illness.
Thank you all for being there. I truly appreciate it. Please feel free to post your comments, questions, remarks, etc.

Friday, November 11, 2016

Surviving the Holidays with chronic illness and post-surgery


Fractured by Gina Welds Hulse

Three days ago I went through one of the toughest surgeries I have ever had....even worse than a C-section, in my opinion.  Yes, I have had a C-section, so I can compare the two.
I had a full hysterectomy!  What do I mean by that?  Well, here is what was removed:

  • uterus
  • ovaries
  • cervix
  • Fallopian tubes and
  • a very large fibroid
Well, you're right...a fibroid is not part of a typical hysterectomy, but it needed to come out due to medical reasons.  I won't go into much details here.
The last couple of days since the surgery has been tough, to say the least.  I've never felt more helpless or useless.  I haven't had much of an appetite, but preparing meals for my young son has been a challenge.  It has been rough on him.  Poor thing!

I saw a post today that reminded me that it is going to be Thanksgiving soon.  Great!  I was also reminded of my surgeon's words that "this type of surgery takes 4-6 weeks of recovery.
You may feel great after a week, but remember that the majority of the healing is taking place inside.  Don't push it!"  He gave me a look as if he has known me for ages, and knows that I am the type that hates being bedridden or sick, for that matter.

The pain has been horrendous.  The nausea, unreal.  Today I tried to move around for as much as I felt able, but it is still very painful.  To top it off, I am super hungry, but can't keep much down except porridge and simple soups, like broth.

I find myself having a little pity-party.  Although I have several surgeries, I have found this to be very difficult to handle.  I don't even want to think about the upcoming holidays, cooking, hanging decorations...you know all those things that everyone else will be doing as the Holidays approach.  Part of me wants to just bow out of this year's festivities, but I don't want others to wonder why I am not taking part....although I believe they would know and understand.

However, I know that I must push through.  As so many of my friends have reminded me of lately...I am a Warrior...a strong one....and I will make it.

I figure that I will have a plan of action when everything begins at Thanksgiving.
I will leave most of the cooking to my son and his family, and pitch in where I am asked.  After all, I don't want to spend weeks after recovering from Thanksgiving before Christmas gets here.
There will be a special area where I can just crash with no risk of bumping into people.  If I feel like lying down on the couch, just leave me there.

When you're chronically ill, one develops coping strategies.  Right now mine is...."This too shall pass."  Although I am looking forward to the week or weeks ahead when I am feeling better, I am taking it one day at a time.  I don't want to be selfish.  There are others who are in a worse condition than I am.

Anyway...some tips for surviving the holidays:
  • Remember giving doesn't have to be expensive or materialistic.
  • Keep things simple. Remember that the holidays are really about giving, loving and being thankful.
  • Cherish and enjoy your precious moments with loved ones.
  • Prepare and plan ahead.
  • Get lots of clean air, pure water, rest, and exercise.
  • Avoid sugar and unhealthy snacks. These will only exacerbate symptoms and aggravate depression. Make your own healthy alternative snacks sweetened with fruit juice, maple syrup, stevia, or other healthy sweeteners.
  • Take these snacks with you when you go to social events. Find alternatives to eat, don't go without so that you feel deprived.
  • Allow extra time to prepare for social events. Don't take on too much.
  • Avoid crowds; shop early. Make some homemade gifts or give gift certificates or take advantage of catalogs and online shopping.
  • Acknowledge and be aware of your feelings. You don't have to feel a certain a way. Allow yourself to feel whatever it is you feel.
  • If you're feeling sad, allow yourself to grieve.
  • Take naps.
  • Don't set expectations too high. Your holiday doesn't have to be perfect.
  • Prioritize and minimize. Don't overdo.
  • Don't forget to give yourself a gift. (A massage, book, extra time in bed or something special you've wanted for a long time.)
  • Communicate your needs and feelings to others.
Until next time......rest calls!